Patient UK Website: www.patient.co.uk

Website Review: Review of patient-oriented websites on hemorrhoids.

repetition, and a couple of appendices that seem to be unnecessary. However, these are minor annoyances that could be easily corrected in future editions and they do not get in the way of the important and interesting story that Dr Hughes has to tell. Bottom Line: I thoroughly recommend this book—it is an easy read, but with germane messages to those both inside and outside of the academic gast...

Confidentiality concerns delay UK patient data system.

UK Facioscapulohumeral Muscular Dystrophy (FSHD) Patient Registry

The United Kingdom (UK) Facioscapulohumeral Dystrophy (FSHD) Patient Registry launched in May 2013. Funded by the Muscular Dystrophy Campaign and supported by the TREAT-NMD Alliance. This patient driven registry collects the internationally agreed core dataset, an outcome of an ENMC Workshop held in 2010 [1], through a novel online portal (http://www.fshd-registry. org/uk). Genetic details are ...

Second Ebola patient is treated in UK.

AUK nurse who contracted the Ebola virus in Sierra Leone has been admitted to the high level isolation unit at the Royal Free Hospital in London. The patient has been named as Pauline Cafferkey, a public health nurse at Blantyre Health Centre in South Lanarkshire. She returned to her home late in the evening on Sunday 28 December, having taken a flight from Casablanca to London Heathrow and the...

Pectus patient information website has improved access to care and patient reported outcomes

BACKGROUND Pectus is the most common congenital disorder. Awareness amongst primary care physicians and the general public is poor. NHS commissioning bodies plan to withdraw funding for this surgery because they deem a lack of sufficient evidence of benefit. The purpose of this study is to assess the effects of introducing a patient information website on referral and activity patterns and on p...